Hello all,
I’m so frustrated because I previously found something that was somewhat regarding my question on this board and now I cannot find it.
I recently received a permanent profile.
It indicates a P3 for depression and P3 for my trachea.
My interactions thus far w/ the IDES office and my PEBLO have been less than stellar. The PEBLO is incompetent. She’s unable to effectively communicate or answer direct questions. Further, she’s given me incorrect information multiple times and I just started this process. The IDES physician is apathetic and I have been told for 6 weeks I would receive a call to discuss my concerns.
ANYWAY, this morning I received the signed permanent profile. It does NOT include my bladder issues. I have had significant procedures and taking medication long term for my bladder including completing stage 1 of an interstim device.The only reason I did not have the device put into place was because of future pregnancy. I tell you all this to state, I am not a doctor, but I can read the regulation - there is NO way my bladder conditions (there’s actually two from the regulation) that meet retention requirements. They don’t put in a spinal stimulator over nothing.
When the PEBLO called me this morning I asked her WHY it was not included. She told me I can claim it w/ the VA. That does not set right w/ me. Or how about someone at this office does her job and see if what I am saying has any validity. It’s not like she’s coming back and saying it does in fact meet retention standards. She’s just giving me her normal half a$% answer and expects me to go on my way.
I am concerned because once I am finished having children, I am very likely going to want that device because I have exhausted all other conservative treatments.
And shouldn’t the permanent profile Include all conditions that do not meet retention standards? I found that somewhere in the regulation previously but now I can’t find it and certainly this IDES office (should be the experts) are ZERO help!
How important is it that I press to have this added? Another concern is I was told this same IDES physician drafts the NARSUM. Why should I trust that she would accurately reflect it in the NARSUM if she can elect not to include it on the profile.
My PCM is currently on leave, so unfortunately, I can’t contact him.
Thanks.
I’m so frustrated because I previously found something that was somewhat regarding my question on this board and now I cannot find it.
I recently received a permanent profile.
It indicates a P3 for depression and P3 for my trachea.
My interactions thus far w/ the IDES office and my PEBLO have been less than stellar. The PEBLO is incompetent. She’s unable to effectively communicate or answer direct questions. Further, she’s given me incorrect information multiple times and I just started this process. The IDES physician is apathetic and I have been told for 6 weeks I would receive a call to discuss my concerns.
ANYWAY, this morning I received the signed permanent profile. It does NOT include my bladder issues. I have had significant procedures and taking medication long term for my bladder including completing stage 1 of an interstim device.The only reason I did not have the device put into place was because of future pregnancy. I tell you all this to state, I am not a doctor, but I can read the regulation - there is NO way my bladder conditions (there’s actually two from the regulation) that meet retention requirements. They don’t put in a spinal stimulator over nothing.
When the PEBLO called me this morning I asked her WHY it was not included. She told me I can claim it w/ the VA. That does not set right w/ me. Or how about someone at this office does her job and see if what I am saying has any validity. It’s not like she’s coming back and saying it does in fact meet retention standards. She’s just giving me her normal half a$% answer and expects me to go on my way.
I am concerned because once I am finished having children, I am very likely going to want that device because I have exhausted all other conservative treatments.
And shouldn’t the permanent profile Include all conditions that do not meet retention standards? I found that somewhere in the regulation previously but now I can’t find it and certainly this IDES office (should be the experts) are ZERO help!
How important is it that I press to have this added? Another concern is I was told this same IDES physician drafts the NARSUM. Why should I trust that she would accurately reflect it in the NARSUM if she can elect not to include it on the profile.
My PCM is currently on leave, so unfortunately, I can’t contact him.
Thanks.
