Good evening,
I have been dealing with random parts of my body swelling, typically my lips, eyes, wrists and portions of my head as well as migraines effecting vision in my left eye since the beginning of the year. I finally bit the bullet and spoke with my PCMa few months back, which led to the dreaded yet justifiable downslip and am waiting on referrals. After a visit to the ER today for my lips and face, inner mouth swelling, the doctor strongly believes I have hereditary angioedema, which my mother suffers from in some form as well as other autoimmune issues. He is recommending referrals to my PCM to look deeper and sent off blood tests.
I am very doctor averse and find myself very anxious about what the next steps look like as I have always been healthy up to this point. I understand a lot of it will be trying different treatments etc. but wondering if anyone has dealt with this less common health issue and what the outcome was. I have tried researching the regs on fitness for duty based on what I currently have but honestly have a tough time interpreting what that looks like in reality. Any help or insight is greatly appreciated, and apologies if this is the wrong thread as I am new here.
I have been dealing with random parts of my body swelling, typically my lips, eyes, wrists and portions of my head as well as migraines effecting vision in my left eye since the beginning of the year. I finally bit the bullet and spoke with my PCMa few months back, which led to the dreaded yet justifiable downslip and am waiting on referrals. After a visit to the ER today for my lips and face, inner mouth swelling, the doctor strongly believes I have hereditary angioedema, which my mother suffers from in some form as well as other autoimmune issues. He is recommending referrals to my PCM to look deeper and sent off blood tests.
I am very doctor averse and find myself very anxious about what the next steps look like as I have always been healthy up to this point. I understand a lot of it will be trying different treatments etc. but wondering if anyone has dealt with this less common health issue and what the outcome was. I have tried researching the regs on fitness for duty based on what I currently have but honestly have a tough time interpreting what that looks like in reality. Any help or insight is greatly appreciated, and apologies if this is the wrong thread as I am new here.