haf2fish

I have no idea how this message thing works. I think I left myself a message on my page in response to your first to me, oops. If your wife has a facebook try and have her join the pots page. Hopefully if she is interested it will give her plenty of insight into what you may be going through. Just the heart stuff alone must be tough to add pots , I can't even imagine. Good luck to you also next week.

No you are absolutely correct, this is a no win situation. I don't even think my wife fully understands all my issues. And I've had many docs that know less about POTS than I do. I have even been referred to mental health because they said it was stress related problems.

All of my issues started after I had a stent placed in my RCA. Next day I started passing out. I got pretty lucky though as my heart issue caused me to start taking Coreg as a beta blocker and that has helped my heart rate considerably. I am going back down to Stanford to see a Neurologist next week to see if he can help with my balance/unsteady gait and other autonomic dysfunctions.

Best of luck

By the way, is it just me or do most people say they understand your issues, but when it comes down to it, you just know they don't? I feel I need to educate people but then it just seems like I'm complaining about my pains and symptoms. Such a no-win situation!!