PCM Dragging along

bubxter

PEB Forum Regular Member
I was diagnosed with Psoriatic Arthritis in January of this year. Once the evidence that arthritis was present in my left hand and both knees I was immediately placed on "MEB Pending" status. I began take methotrexate (immune suppressant) and consistently upped my dosage once a month for 6 months. I exceeded the amount of methotrexate my rheumatologists planned for me and saw no improvement. In July my Rheumatologist put me on Enbrel and subcutaneous injection which I have been taking for close to 2 months now and have seen some improvement in every day activities. I am now taking both methotrexate and Enbrel with hopes for progress. I have been on a duty limiting profile since January and will not come off of my current duty limiting profile until January of next year.

As of 5 Jul my PCM said she would be writing my narrative summary with in “the month,” when 5 Aug came around my PCM was on leave and I had no narrative summary. When I called to get an update they told me my PCM would get to it when she could because she was busy and had others to write. I brought this up to my PEBLO and of course the only thing they could say is “I’ll look into it and get back to you.” No word from the PEBLO so I call the clinic again and get the same answer from my PCM with no tentative time frame. Next option was to get the Shirt involved and all that came from that was an appointment and my Shirt telling me that if nothing comes from the appointment the my PCM that we would talk to the patient advocate.

I understand that my PCM is busy but at the same time I’m in “Limbo.” I would like to continue with my life, I understand may be separated however the waiting on my PCM is affecting my career.
Does anyone know where I can take this, anything I can do to push this, what will the patient advocate actually be able to do for me?
Any advice to keep my self prepared?
 
Lately, I a have been receiving a lot of requests for support from thoses with Spondyloarthropathies, which psoriatic arthritis is one of many forms. Below is my new canned response that provides the basics for evaluating and rating Spondyloarthropathies.

Mike

Documenting and rating Spondyloarthropathies is often not understood very well by MEB, PEB and VA officials. Proper documentation in MEBs and TDRL review examinations is critical. Per DoDI 1332.38, MEBs and TDRL review examinations physicals are required to cover all medical conditions with full clinical data. In addition, the 14 October 2008 DoD Directive Type Memorandum requires that MEBs include the minimum data from applicable VA AMIE worksheets. These worksheets can be found here:

Index of Disability Examination Worksheets (U.S. Department of Veterans Affairs)

Spondyloarthropathy can include the need for the data from the following worksheets, depending on manifestations:

Bones: http://www.vba.va.gov/bln/21/Benefits/exams/disexm06.pdf
Eyes: http://www.vba.va.gov/bln/21/Benefits/exams/disexm20.pdf
General Medical Exam: http://www.vba.va.gov/bln/21/Benefits/exams/disexm23.pdf
Hand, Thumb, Fingers: http://www.vba.va.gov/bln/21/Benefits/exams/disexm27.pdf
Heart: http://www.vba.va.gov/bln/21/Benefits/exams/disexm28.pdf
Infectious, Immune and Nutritional:
http://www.vba.va.gov/bln/21/Benefits/exams/disexm28.pdf
Intestines: http://www.vba.va.gov/bln/21/Benefits/exams/disexm33.pdf
Joints: http://www.vba.va.gov/bln/21/Benefits/exams/disexm34.pdf
Respiratory:
http://www.vba.va.gov/bln/21/Benefits/exams/disexm48.pdf
http://www.vba.va.gov/bln/21/Benefits/exams/disexm49.pdf
Skin Diseases: http://www.vba.va.gov/bln/21/Benefits/exams/disexm52.pdf
Spine: http://www.vba.va.gov/bln/21/Benefits/exams/disexm53a.pdf

To ensure proper ratings, it is critical that MEBs, TDRL review physicals and VA C&P examinations properly cover all the manifestations of Spondyloarthropathy.

Spondyloarthropathy is rated under DC 5002 and is complicated. Ankylosing Spondylitis is even more complicated due to the addition of VASRD 5240 (Ankylosing Spondylitis) in 2003. When DC 5240 was added, many VA and military raters opined that DC 5002 rating criteria could no longer be used for Ankylosing Spondylitis. This was never true but it still took me over four years to get the VA to clarify this issue and many wounded warriors were cheated out of proper benefits in the interim. In the February 2009 VA Conference Call newsletter, the VA stated the following:

Evaluating claims for ankylosing spondylitis

Ankylosing Spondylitis (AS) was assigned a specific Diagnostic Code (DC) of 5240 with the VA Schedule for Rating Disabilities change for conditions of the spine in September 2003. C&P Service has received multiple inquiries from veterans’ advocates, indicating that AS is being improperly evaluated in light of this change. DC 5240 falls under the General Rating Formula for Diseases and Injuries of the Spine. Raters must be cognizant that AS, in addition to causing limitation of motion of the spine or other symptoms, may be an active disease process. If the AS is manifested as an active disease process, consideration must be given to evaluating it under the provisions of DC 5009, as an arthritic process. DC 5009, according to the schedule, is to be evaluated under the criteria for rheumatoid arthritis, DC 5002. AS, when an active process, may affect other joints or body systems. Such other residuals should be identified and properly adjudicated.

Therefore, when evaluating AS, the RVSR must determine, based on the evidence in file, if the AS is an active process, and if so, properly evaluate it under DC 5009 (5002). If the AS is quiescent, it would be evaluated under 5240 based on the chronic residuals affecting the spine as well as any other joints or body systems under the appropriate diagnostic code.

In August 2009, the United States Army Physical Disability Agency (USAPDA) released policy that echoes the VA clarification above. The policy can be found here:
https://www.hrc.army.mil/site/active/tagd/pda/AS.pdf. Other services should be rating Ankylosing Spondylitis in this manner.

The DC 5002 rating criteria is in two parts, the active disease process and the chronic residuals. The active disease criteria still suffers from subjective rating terminology such as exacerbations, incapacitating exacerbations, severely incapacitating exacerbations, totally incapacitating, definite impairment to health and severe impairment to health. I have tried numerous times to get the VA to define these terms objectively but without success.

5002 Arthritis rheumatoid (atrophic) as an active process
With constitutional manifestations associated with active joint involvement, totally incapacitating 100%
Less than criteria for 100% but with weight loss and anemia productive of severe impairment of health or severely incapacitating exacerbations occurring 4 or more times a year or a lesser number over prolonged periods 60%
Symptom combinations productive of definite impairment of health objectively supported by examination findings or incapacitating exacerbations occurring 3 or more times a year …………..40%
One or two exacerbations a year in a well-established diagnosis.............20%

It behooves individuals with Spondyloarthropathy to try and ensure their MEB, TDRL, review or VA exam describe their condition using this terminology. If the disease is in the active process (active inflammation treated with TNF drugs such as Enbrel or Humira) the report needs to state the disease is in an active process and use DC 5002 terminology to describe the impact.

VASRD DC 5002 also has criteria for chronic residuals. (Note: the higher of the active process and chronic residual criteria is used for the final rating). This chronic residual criteria is as follows:

For chronic residuals:
For residuals such as limitation of motion or ankylosis, favorable or unfavor¬able, rate under the appropriate diagnostic codes for the specific joints involved. Where, however, the limitation of motion of the specific joint or joints involved is noncompensable under the codes a rating of 10 percent is for application for each such major joint or group of minor joints affected by limitation of motion, to be combined, not added under diagnostic code 5002. Limitation of motion must be objectively confirmed by findings such as swelling, muscle spasm, or satisfactory evidence of painful motion.
Note: The ratings for the active process will not be combined with the residual ratings for limitation of motion or ankylosis. Assign the higher evaluation.

Please note the 10% per joint provision as this can often lead to the highest rating. Every joint affected needs to be thoroughly evaluated to include a range of motion study. Each major joint (or set of minor joints) with any limitation of motion should be rated at no less than 10% disabling. If the spine is affected, and it usually is with Ankylosing Spondylitis, the residual damage to the spine in rated per VASRD DC 5240. Other joints affected are rated per the VASRD DC covering that area or condition.

All other manifestations of Spondyloarthropathy need to be included as well. This can include eye, lung, GI and heart issues. Often psoriasis is a manifestation of Spondyloarthropathy. If so, under VASRD DC 7816, it should be rated at no less than 60% disabling if it is treated on a continual basis with an immunosuppressive drug such Enbrel, Humira or Remicade.

In conclusion, Spondyloarthropathy is a tricky disease to evaluating and rate. It is important that those undergoing DES or VA evaluation for Spondyloarthropathy understand how these conditions are properly evaluated and rated and ensure their evaluations document the truth well.

A good place to read up on rating issues and proper rating procedures is the VA’s Board of Veteran Appeals (BVA). The BVA site is located here: Board of Veterans' Appeals Decisions Search

On the site you can search for Spondyloarthropathy cases and review the evaluation and rating issues raised on how the BVA ruled on these issues. Similarly, the US Court of Appeals for Veteran Claims (CAVC) website can be used to research Spondyloarthropathy cases and how the CAVC ruled on these cases. The CAVC website can be found here: USCAVC - Decisions and Opinions

Mike
 
Thank you Mike that is all really helpful information and will be taking some time to get proficient.
Does the fact I am taking immune suppressants affect anything?
 
Absolutely. Psoriasis as an unfitting condition plus Enbrel equals a 60% rating.
 
This is good news. The psoriasis right is just affecting my finger and toe nails, not really much of my skin except from the occasional excema flare up.
Another question I had, I remember reading on here somewhere as a member undergoing MEB we are allowed a copy of our medical records. The member posting said he asked for a copy and every week would check for updates. Is the realistic to ask of them? Is there anything like this I should be doing?
 
What happened for me was as soon as I was notified that I was going to the MEB process, I requested copies of my medical records. It was free as long as I was doing the MEB thing. I asked for updates every 3 months or sooner only if a lot of appointment were involved. This gives you time to review and hopefully be prepared.
 
It has been 2 months after the PCM telling me it would be within the month that she would be writting my NARSUM. After an appointment with my PCM today I was told that it will take months and months... before the NARSUM will be writtine because she will be waiting on information from the "system". I have my shirt invovled and will be getting intouch with my Patient Advocat to see what else can be done.
 
Sounds like your PCM doesn't know how it's supposed to go down. Every medical facility has a FCP (family care practitioner) who is in charge of MEB initiation and procedure. That individual is who your PCM needs to speak with. Your shirt can easily chat with the med group shirt to find out where the hold-up is. Also, do you see regular family practice or flight medicine?
 
I did get my shirt involved and she called and got the Patient Advocate involved. Along with the PA I asked my PEBLO about the OBM (optimum medical benefit) she couldn't answer me, and COB that day the PEBLO requested the CC letter. MY packeage is going to the local board this Thursday. I have yet to see the NARSUM which I though i should have by now. My PEBLO never told me the NARSUM was compelete until I asked about the CC letter being written without the NARSUM.
I see family pratice.
 
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