Hello all.
BLUF: How important is the DOD% and making sure the referred condition(s) are accurate if over 20 years active duty Navy?
I'm pretty sure my entire IDES process is crazy, but they all say its just me.... so here goes:
1. BACKSTORY & REFFERAL
I was diagnosed with Non-Hodgkin's Lymphoma in 2021 and when through 6 months of an intensive chemotherapy that included staying in the hospital for 5 days of continuous pump chemo plus and additional lumbar puncture CNS chemo, every 21 days. I am putting this out there early because I think its important to know that.... but my PCM apparently doesn't agree.
My treatment was through a civilian oncologist and I have been in remission since July 2022 (yay!). I was determined to stay active duty but chemo caused a slew of long term and chronic effects. There have been quite a few issues who is supposed to treat these issues, with my oncologist saying that is my PCM swim lane and my PCM saying that my oncologist should be treating chemo-related side effects. As a result, none of the chemo-related issues were ever truly addressed, aside from being sent to MH because I have severe medical anxiety and am in constant fear of cancer returning. My MH provider finally referred me to IDES in May 2024 with Generalized Anxiety Disorder as the referred condition.
2. MEDICAL RECORD & REFERRED CONDITION
It wasn't until my PEBLO called for my first counseling that I found out that NONE - NOT ONE PAGE of my oncology record was ever put in my military medical record (who knows what my case manager was doing for 2 years let alone how my PCM was "treating" me without even knowing what type of chemo I had) I had to scramble to print 1400 pages of this record of and give them to medical records to be uploaded to MHGENISIS. I was told this was done, although I can't see them in my account... more on that later.
Anyway, when I discussed this with the PEBLO and she told me I was only referred for anxiety and to speak to my provider about listing all of the conditions that make me unable to do my job individually. I had this discussion with my PCM, who told me she did not have to list every conditions and that because she was MH, she only had to refer MH conditions. But, after speaking with my PCM, she included these snippets into her NARSUM:
- "on going symptoms of poor sleep, excessive worry, restlessness, easily fatigued, headaches, increased body tension, poor memory, difficulty concentrating and irritability with depressed mood"
- "overall body tension and constant pain with inability to focus on work or home"
- "'brain fog' that has come after chemo treatment makes it extremely difficult for her to do her military occupation"
- "continued issues with sleep"
- "has undergone 2 years of psychotherapy and medication management without success. Continues to experience difficulties with sleep, focusing, memory, and feeling on edge"
Still with me? Well there's more....
3. MSC & VA APPTS
Now, my MH provider assured me that because she had written these things into her referral report, they would be considered as 'referred conditions'. So onto the next step, I complete the VA Claim for with the MSC. Now, I take ownership for letting myself be mislead during this part.... but lets also be clear that the 'brain fog' chemo causes makes it hard for me to process information, think through problems, and articulate my thoughts. Regardless, I listed the conditions that my MSC told me to on my VA claim (30 something items) but I never stopped to look at them all together to see if anything was missing. I did let the MSC know that I was waiting on the results of a sleep study I had that week, and he told me to let him know when I got the results and we could add it to the claim.
When I got my list of VA appointments, I realized none of the conditions that were in my oncology record were being evaluated, specifically all of the conditions that my MH provider had wrote about in the NARSUM. I tried to call the MSC to ask if he had access to that when he made the list of conditions, but he never answered the phone. The next week, I got the sleep study results confirming sleep apnea, and emailed the MSC to let him know the results and ask him to add it to the claim. When I didn't hear back from him, I tried to call but couldn't get through. I emailed again the following week and tried to call - no luck. The following Monday I tried to call again, and failing to get through again, contacted my PEBLO, who then emailed the MSC asking him to respond.... no luck. The day before my final exam, I contacted the PEBLO and asked to speak to another MSC and she said she would have her supervisor look into it.
Wouldn't you know that when the supervisor got involved, the MSC emailed him back immediately to tell him all my exams were complete and that he was just waiting on my results. There were quite a few emails between us (with the PEBLO and supervisor cc'd) but the MSC said that he wouldn't add any claims or appointments unless my provider added it to my "0819" and that I can always add claims after I get a DD214. I don't even know what a 0819 is.
I also let him know that we ran out of time during my last appoint (with 17 DBQs) and that we didn't get to several DBQs or the Self-Health Assessment. Then I asked him to call me to discuss the appointment because the VA examiner had literally pushed my body during the ROM measurements when I couldn't move any farther. Like put his hand on my shoulder and pushed me down to bend farther during my back ROM, pushed my leg across my body during hips, pulled down on my ankle, etc.
MSC said that was part of the required regulations and that these were contracted specialists who specialize in doing claims. Maybe that's correct but seems to go against everything I read on here.... He also said if the provider ran out of time he would annotate it is his notes. Guess not cause I was never rescheduled
4. CURRENT STATUS
PEBLO eventually called me and said not to worry about all of this and that I would have IMR or appeal options later. But she isn't sure if that covers the missing claims or the referred conditions. But I can appeal if I don't like my rating. I have an appt to discuss with my lawyer next week.
5. FINALLY.... THE POINT
Does all of this sound normal? Honestly, I'm over 20 years so if the VA gives me 10% for ANY conditions I will be retired with YOS pension, so does all of this fight for referred conditions and DOD% even matter?
My AdminO tells me the DOD% is important because that % of my pension will not be federally taxed (not the VA%, but an amount of my pension equal to whatever % the DOD gives me for my referred conditions will be tax free).
If it does all matter and the fight is worth it.... what do I do from here?
Thank you all so much for your help and advice.
P.s. feel free to leave a review of this short novella on amazon
P.s.s. Now you know why there was a BLUF haha
BLUF: How important is the DOD% and making sure the referred condition(s) are accurate if over 20 years active duty Navy?
I'm pretty sure my entire IDES process is crazy, but they all say its just me.... so here goes:
1. BACKSTORY & REFFERAL
I was diagnosed with Non-Hodgkin's Lymphoma in 2021 and when through 6 months of an intensive chemotherapy that included staying in the hospital for 5 days of continuous pump chemo plus and additional lumbar puncture CNS chemo, every 21 days. I am putting this out there early because I think its important to know that.... but my PCM apparently doesn't agree.
My treatment was through a civilian oncologist and I have been in remission since July 2022 (yay!). I was determined to stay active duty but chemo caused a slew of long term and chronic effects. There have been quite a few issues who is supposed to treat these issues, with my oncologist saying that is my PCM swim lane and my PCM saying that my oncologist should be treating chemo-related side effects. As a result, none of the chemo-related issues were ever truly addressed, aside from being sent to MH because I have severe medical anxiety and am in constant fear of cancer returning. My MH provider finally referred me to IDES in May 2024 with Generalized Anxiety Disorder as the referred condition.
2. MEDICAL RECORD & REFERRED CONDITION
It wasn't until my PEBLO called for my first counseling that I found out that NONE - NOT ONE PAGE of my oncology record was ever put in my military medical record (who knows what my case manager was doing for 2 years let alone how my PCM was "treating" me without even knowing what type of chemo I had) I had to scramble to print 1400 pages of this record of and give them to medical records to be uploaded to MHGENISIS. I was told this was done, although I can't see them in my account... more on that later.
Anyway, when I discussed this with the PEBLO and she told me I was only referred for anxiety and to speak to my provider about listing all of the conditions that make me unable to do my job individually. I had this discussion with my PCM, who told me she did not have to list every conditions and that because she was MH, she only had to refer MH conditions. But, after speaking with my PCM, she included these snippets into her NARSUM:
- "on going symptoms of poor sleep, excessive worry, restlessness, easily fatigued, headaches, increased body tension, poor memory, difficulty concentrating and irritability with depressed mood"
- "overall body tension and constant pain with inability to focus on work or home"
- "'brain fog' that has come after chemo treatment makes it extremely difficult for her to do her military occupation"
- "continued issues with sleep"
- "has undergone 2 years of psychotherapy and medication management without success. Continues to experience difficulties with sleep, focusing, memory, and feeling on edge"
Still with me? Well there's more....
3. MSC & VA APPTS
Now, my MH provider assured me that because she had written these things into her referral report, they would be considered as 'referred conditions'. So onto the next step, I complete the VA Claim for with the MSC. Now, I take ownership for letting myself be mislead during this part.... but lets also be clear that the 'brain fog' chemo causes makes it hard for me to process information, think through problems, and articulate my thoughts. Regardless, I listed the conditions that my MSC told me to on my VA claim (30 something items) but I never stopped to look at them all together to see if anything was missing. I did let the MSC know that I was waiting on the results of a sleep study I had that week, and he told me to let him know when I got the results and we could add it to the claim.
When I got my list of VA appointments, I realized none of the conditions that were in my oncology record were being evaluated, specifically all of the conditions that my MH provider had wrote about in the NARSUM. I tried to call the MSC to ask if he had access to that when he made the list of conditions, but he never answered the phone. The next week, I got the sleep study results confirming sleep apnea, and emailed the MSC to let him know the results and ask him to add it to the claim. When I didn't hear back from him, I tried to call but couldn't get through. I emailed again the following week and tried to call - no luck. The following Monday I tried to call again, and failing to get through again, contacted my PEBLO, who then emailed the MSC asking him to respond.... no luck. The day before my final exam, I contacted the PEBLO and asked to speak to another MSC and she said she would have her supervisor look into it.
Wouldn't you know that when the supervisor got involved, the MSC emailed him back immediately to tell him all my exams were complete and that he was just waiting on my results. There were quite a few emails between us (with the PEBLO and supervisor cc'd) but the MSC said that he wouldn't add any claims or appointments unless my provider added it to my "0819" and that I can always add claims after I get a DD214. I don't even know what a 0819 is.
I also let him know that we ran out of time during my last appoint (with 17 DBQs) and that we didn't get to several DBQs or the Self-Health Assessment. Then I asked him to call me to discuss the appointment because the VA examiner had literally pushed my body during the ROM measurements when I couldn't move any farther. Like put his hand on my shoulder and pushed me down to bend farther during my back ROM, pushed my leg across my body during hips, pulled down on my ankle, etc.
MSC said that was part of the required regulations and that these were contracted specialists who specialize in doing claims. Maybe that's correct but seems to go against everything I read on here.... He also said if the provider ran out of time he would annotate it is his notes. Guess not cause I was never rescheduled
4. CURRENT STATUS
PEBLO eventually called me and said not to worry about all of this and that I would have IMR or appeal options later. But she isn't sure if that covers the missing claims or the referred conditions. But I can appeal if I don't like my rating. I have an appt to discuss with my lawyer next week.
5. FINALLY.... THE POINT
Does all of this sound normal? Honestly, I'm over 20 years so if the VA gives me 10% for ANY conditions I will be retired with YOS pension, so does all of this fight for referred conditions and DOD% even matter?
My AdminO tells me the DOD% is important because that % of my pension will not be federally taxed (not the VA%, but an amount of my pension equal to whatever % the DOD gives me for my referred conditions will be tax free).
If it does all matter and the fight is worth it.... what do I do from here?
Thank you all so much for your help and advice.
P.s. feel free to leave a review of this short novella on amazon

P.s.s. Now you know why there was a BLUF haha
