Autoimmune Timeline

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aem413

Active Member
PEB Forum Veteran
Registered Member
Ball just got rolling on my IRILO so I thought I’d share my timeline and update as things come. For additional context, I’m a flyer, and I was diagnosed with undifferentiated connective tissue disease in January pending the development of additional symptoms (as is the nature of autoimmune conditions). More symptoms have developed, but my next rheum appointment isn’t until later this month.

September 2024: symptoms start
September 30, 2024: Down/DNIF start
November 2024: referral to rheumatologist
January 2025: start Plaquenil
February 2025: start Zofran for persistent nausea (side effect of Plaquenil)
March 10, 2025: Code 37
March 27, 2025: referral to physical med and rehabilitation (essentially pain management)
April 8, 2025: notified IRILO is starting by shirt. Filled in cc sections on CIS, cc signs as “recommend retain to allot more time for convalescent care”
April 9, 2025: returned CIS to shirt with own comments

Happy to clarify anything about my condition, symptoms, or any steps in between I didn’t detail! I know how helpful it was for me to see other people going through something similar and how the process looked. I’m just getting started so would love to hear any similar experiences and what things looked like after a cc signed retain for convalescent care.
 
aem413 said:
Ball just got rolling on my IRILO so I thought I’d share my timeline and update as things come. For additional context, I’m a flyer, and I was diagnosed with undifferentiated connective tissue disease in January pending the development of additional symptoms (as is the nature of autoimmune conditions). More symptoms have developed, but my next rheum appointment isn’t until later this month.

September 2024: symptoms start
September 30, 2024: Down/DNIF start
November 2024: referral to rheumatologist
January 2025: start Plaquenil
February 2025: start Zofran for persistent nausea (side effect of Plaquenil)
March 10, 2025: Code 37
March 27, 2025: referral to physical med and rehabilitation (essentially pain management)
April 8, 2025: notified IRILO is starting by shirt. Filled in cc sections on CIS, cc signs as “recommend retain to allot more time for convalescent care”
April 9, 2025: returned CIS to shirt with own comments

Happy to clarify anything about my condition, symptoms, or any steps in between I didn’t detail! I know how helpful it was for me to see other people going through something similar and how the process looked. I’m just getting started so would love to hear any similar experiences and what things looked like after a cc signed retain for convalescent care.
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I’m not a flyer, but I went through an IRILO last year and had a similar situation where the CC marked “retain for convalescent care.” In my case, that gave me about 6 more months before a full MEB was initiated. During that time, they were really focused on whether my condition would stabilize or worsen.
 
Voll1973 said:
I’m not a flyer, but I went through an IRILO last year and had a similar situation where the CC marked “retain for convalescent care.” In my case, that gave me about 6 more months before a full MEB was initiated. During that time, they were really focused on whether my condition would stabilize or worsen.
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Thanks for sharing your experience! When I asked my shirt what the cc comment meant, the answer was pretty vague. I hope things turned out how you wanted them to in your board!
 
September 2024: symptoms start
September 30, 2024: Down/DNIF start
November 2024: referral to rheumatologist
January 2025: start Plaquenil
February 2025: start Zofran for persistent nausea (side effect of Plaquenil)
March 10, 2025: Code 37
March 27, 2025: referral to physical med and rehabilitation (essentially pain management)
April 8, 2025: notified IRILO is starting by shirt. Filled in cc sections on CIS, cc signs as “recommend retain to allot more time for convalescent care”
April 9, 2025: returned CIS to shirt with own comments
April 28, 2025: IRILO recommendation of full MEB submitted to AFPC
May 7, 2025: AFPC decides concare until 7 Sept bc they want more information; waiting on next steps
 
September 2024: symptoms start
September 30, 2024: Down/DNIF start
November 2024: referral to rheumatologist
January 2025: initial diagnosis
March 10, 2025: Code 37
March 27, 2025: referral to physical med and rehabilitation (essentially pain management)
April 8, 2025: notified IRILO is starting by shirt. Filled in cc sections on CIS, cc signs as “recommend retain to allot more time for convalescent care”
April 9, 2025: returned CIS to shirt with own comments
April 28, 2025: IRILO recommendation of full MEB submitted to AFPC
May 7, 2025: AFPC decides concare until 7 Sept bc they want more information;
August 12, 2025: PCM submits new data as addendum to previous IRILO up to AFPC - fingers crossed they remove concare early and proceed with MEB
 
August 15: AFPC returns with full MEB (I didn’t receive this information until September 5)
September 8: Initial Meeting with PEBLO

I was told that MEBs are currently moving mostly on schedule with completion in 4-6 months.
 
aem413 said:
August 15: AFPC returns with full MEB (I didn’t receive this information until September 5)
September 8: Initial Meeting with PEBLO

I was told that MEBs are currently moving mostly on schedule with completion in 4-6 months.
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I was also told the same. Interesting you didnt receive that information until almost 3 weeks later...
 
justgoingthroughit said:
I was also told the same. Interesting you didnt receive that information until almost 3 weeks later...
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I’d agree with that especially considering the response from AFPC was next day (PEBLO actually submitted to AFPC on Aug 14. It was my PCM who submitted to the PEBLO on the 12th). Apparently it got mixed up in things leading up to an inspection. Not much to do about that now though, just happy it’s MOVING at this point. Should hear from MSC by end of next week
 
Been a second but here’s all the latest:

September 18: meeting with MSC
September 21: first contact from VA contractor
October 1-24: C&P exams (general, dental, vision, audio, mental health)

I was told it would be about 3 weeks from the last appointment for my package to be ready to send up and around 3 months to have percentages back with a BIG “it depends” on all of that.
 
aem413 said:
Been a second but here’s all the latest:

September 18: meeting with MSC
September 21: first contact from VA contractor
October 1-24: C&P exams (general, dental, vision, audio, mental health)

I was told it would be about 3 weeks from the last appointment for my package to be ready to send up and around 3 months to have percentages back with a BIG “it depends” on all of that.
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Hey, I also have an autoimmune disease and we’re right on the same timeline. Just finished my VA appointments on the 21st. Has anyone told you what the next step is? I’m waiting to hear from my MSC.
 
justin101 said:
Hey, I also have an autoimmune disease and we’re right on the same timeline. Just finished my VA appointments on the 21st. Has anyone told you what the next step is? I’m waiting to hear from my MSC.
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next it goes gets quality controlled, then sent to ur MSC, then to ur peblo. When ur PEBLO has it she tells u and notifies u that a NARSUM will be written and then you will have a local board, after local board u go to IPEB
 
justin101 said:
Hey, I also have an autoimmune disease and we’re right on the same timeline. Just finished my VA appointments on the 21st. Has anyone told you what the next step is? I’m waiting to hear from my MSC.
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Oh wow! Talk about small world. Hate to hear you’re going through it too.

My PEBLO actually called me just this morning to tell me she received all my stuff. She said she’d talk to my PCM about getting the NARSUM addendum for the local board but didn’t tell me how long that would take. She did say I could get my VA rating as soon as a week from now which is crazy. I was under the impression the MSC wouldn’t have my stuff for 3 weeks following my last appointment. She did mention that the DOD side of things is a little slower with the shutdown, but we’ll see how it plays out!
 
aem413 said:
Oh wow! Talk about small world. Hate to hear you’re going through it too.

My PEBLO actually called me just this morning to tell me she received all my stuff. She said she’d talk to my PCM about getting the NARSUM addendum for the local board but didn’t tell me how long that would take. She did say I could get my VA rating as soon as a week from now which is crazy. I was under the impression the MSC wouldn’t have my stuff for 3 weeks following my last appointment. She did mention that the DOD side of things is a little slower with the shutdown, but we’ll see how it plays out!
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My peblo told my the peb is completely shut down, i signed my 618 on the 22nd
 
aem413 said:
Jesus Christ… I guess I got the sugar coated version of that message
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Well im hoping my peblo is wrong. The army timelines are still getting IPEB responses so im confused.
 
On Oct 31 I got a message from Optum saying they’re scheduling me for another appointment. Gave full availability and soonest available was Nov 17. Looks like they want to re-evaluate a few conditions from my general exam. Guess that pushes the timeline back a few more weeks
 
I got curious and checked my VA portal to see my claim status last Thursday (Nov 13) and my claim was filed as closed. PEBLO told me I was rated 100% and my connective tissue disease was rated 60% - don’t know any other individual rating at this point. Apparently the appointment they had me do today was due to some kind of policy change? Unclear but I guess it affected a lot of people.
 
@aem413 i was curious do you have to take any biologica or methotrexate for your UCTD? i’m currently being med boarded for the same issue and im on methotrexate and possibly moving to a biologic i was just trying to see if my rating would be similar to yours. And congrats on your ratings!
 
allthingaforareason said:
@aem413 i was curious do you have to take any biologica or methotrexate for your UCTD? i’m currently being med boarded for the same issue and im on methotrexate and possibly moving to a biologic i was just trying to see if my rating would be similar to yours. And congrats on your ratings!
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Hey sorry I just saw this! But I do take methotrexate (12.5mg 1x/weekly) and also plaquenil twice a day. My doctor hasn’t mentioned anything about adding biologics, but I did get a lumbar epidural steroid injection thru my pain management doc, and that helped stiffness/pain in my shoulders, back, and hips significantly.
 
aem413 said:
I got curious and checked my VA portal to see my claim status last Thursday (Nov 13) and my claim was filed as closed. PEBLO told me I was rated 100% and my connective tissue disease was rated 60% - don’t know any other individual rating at this point. Apparently the appointment they had me do today was due to some kind of policy change? Unclear but I guess it affected a lot of people.
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At what point were you able to see your claim in the Va portal? I’m also using optum serve and it doesn’t show anything right now. I’m 5 appointments in and one last one to go next week.
 
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